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January 3rd, 2008, 19:06 GMT · By Stefan Anitei

Meet the Man With no Face!

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Mestre with his sister
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This is unique in the world of medicine: a facial tumor of 12 lb (5.4 kg) in weight and 15 cm (6 in) in diameter. Its victim is the Portuguese Jose Mestre, 51, the man that really
lacks a face.

"Children see me and start crying. They probably think I'm an animal," Mestre told The Sun.

But the huge flesh piece is beyond of impairing his social life: the man could die suffocated if not immediately operated.
Of course, Jose cannot work and the giant tumor, growing continuously since he was 16, destroyed one eye, extended over his mouth, tongue, and lips, twisting his gums and removing his teeth. At birth, the tumor was just a mark, but the vascular malformation on his lip started its development by the age of 11; when he was 16 years old, it was already expanding. The tumor bleeds frequently, especially during the sleep.

"I don't like to speak very much because I dribble all the time." Mestre told The Sun.

In his native Lisbon, Jose is a local "celebrity" dubbed 'Stained Skin.' Jose's reached his actual condition due to medical misinformation, misdiagnosis, financial problems and religious beliefs. Vascular tumors are congenital and quite common, but usually children have them removed at a very young age. And also they usually do not grow as big as this one.

After the death of his mother several years ago, Jose was taken into care by his younger sister Guida. He refused a British offer to be operated as he is a Jehovah's Witness, and this religion denies blood transfusions. Now a team in London came up with a plan to remove the tumor bit by bit, with no transfusion.

Mestre with his sister
Enlarge picture
"Removing the tumor may not restore symmetry to a person." Dr. Andrew Wexler, the president of the American Society of Maxillofacial Surgeons and member of the American Society of Plastic Surgeons told ABC News.

"There likely will still be evidence of the tumor after the reconstruction due to the tissue and bones that have been consumed by the malformation for so many years. The tumor itself can cause changes in the size of the facial bones or in the facial
Mestre
Enlarge picture
structure because the increased blood supply [that flows to a tumor] can lead to increased growth in facial tissue. (And) the bigger the arteries involved, the more extensive the surgery will be." said Wexler, who has not treated Mestre.

These type of tumors can go further, impairing facial nerve functions (like the ability to swallow, speak or smile) or inducing heart and lung issues, even after their removal.
FILED UNDER:
cancer
tumor
blood

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READER COMMENTS:


Comment #1 by: Keyla Laboy on 04 Jan 2008, 00:04 UTC reply to this comment

I am so sorry..... to what happened to your brother's face. I have never seen anything like that happen...if there is anything I can do I would like to help.You know what I think you should do..I think you should start a fundraiser to help your brother.

Sincerely,
Keyla Laboy

P.S. I am really sorry =(


Comment #2 by: Danny Haszard on 04 Jan 2008, 18:42 UTC reply to this comment

The hypocrite Jehovah's Witness cult DOES ALLOW blood and plays God with what “parts” can be taken.

The Watchtower religion "invented" the no blood transfusion dogma in 1945,thousands of men,women,children have perished in obedience.


Comment #3 by: Shelley Craig on 01 Oct 2008, 01:07 UTC reply to this comment

I wish Jose and his family the best of luck. I really want to leave a comment on his sister. I have never seen anyone love someone like she does, this woman is Amazing!! and one of the most beautiful people I have ever seen. I have never seen someone care as much for her brother as this woman does I can see how she hurts for him and I give her all the credit in the World...Peace and Love to you and your brother


Comment #4 by: sydney on 22 Dec 2008, 18:09 UTC reply to this comment

Jose, you are so brave. I'm doing a speech on you. When i saw ur show on Discovary channel u inspaired me. I hope that you are okay.

A agree with your relgion. But if it is that bad then your should look for a operation really fast


Comment #5 by: jamila bano on 20 May 2010, 06:44 UTC reply to this comment

no doubt jose is a brave man,U must go for operation..


Comment #6 by: jerome on 13 Sep 2010, 15:54 UTC reply to this comment

how can we help........


Comment #7 by: IWG! on 07 Nov 2011, 21:24 UTC reply to this comment

Very sad to think we always complain and there's people out there without a face!


Comment #8 by: Sunsetranch on 28 Feb 2012, 23:51 UTC reply to this comment

I think Mr. Mestre and Guida are the bravest people I have ever seen. Through all their struggles, pain and exhaustion they survive and came out dancing. Watching this makes us truly appreciate that every day is is gift. If there is anyway to let them know what an extreme affect they had on us by sharing their story. God Bless both of them!

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